Alex Rodriguez is a 17 year-old patient in Hope’s Partners in Care program and The Children’s Hospital’s Prescribed Pediatric Extended Care (PPEC) program. Alex has Congenital Mitochondrial Myopathy, which affects muscle movement and speech. The music therapy he has received has enabled him to develop his music and production skills, leading him to create his own music CD on his computer, along with a video accompaniment.
The two programs’ staff and volunteers held a CD release party in his honor. Alex gave autographed copies to family and friends.
“This is a great example of how we help children and young people in our care to find as much enjoyment and fulfillment in life as possible,” according to Hope President and CEO Samira K. Beckwith. “Alex has made a great accomplishment, and everyone on his care team is very proud of him.” Beckwith added that Hope was the first hospice to offer the PIC program and played a critical role in introducing it nationwide.
Visit our Partners in Care page to find out more about this special program for children.